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10/25/2016  |   1:30 PM - 2:30 PM   |  BGPOP Building 4A/B/C

Global Hearing Loss Database

Thanks to Google.org support, World Wide Hearing Foundation International (World Wide Hearing) is developing the first worldwide hearing-loss database that is open access and gathers data in real-time. The objective is to facilitate research, provide statistics for decision-makers, and facilitate world-scale interventions to tackle hearing loss. Current Barriers to Data Access: a) Lack of prevalence data worldwide––lack of such data presents a barrier to awareness, policy-making, and development of appropriate, targeted interventions, particularly in lower and middle-income countries; b) Hearing diagnostic and screening devices capture data locally, in silos; having limited or no connection to the Cloud; c) No data aggregation within countries; d) No data aggregation across countries and devices; and e) No standard protocols for capturing and uploading hearing-loss data. Actions of a Global Hearing Loss Database: 1) Cloud database will capture a) Anonymized prevalence data with the revised WHO survey and with reduced transcription costs and b) other field data; 2) Will aggregate existing prevalence data and new data. Key Features of the Database: a) Open access, b) Standardized data, c) Time-connected data for trends analysis, and d) Geography-connected data for pattern analysis. Open Access: World Wide Hearing is a non-profit organization that supports a policy of open source and open access for all of its projects. The protocol for data upload will be made open source. The resulting database will be open access and designed for the entire community in the field of hearing loss. Call to Action: World Wide Hearing is inviting contributors from around the world to participate and provide data to this collaborative project.

• Current barriers to access to hearing loss data.
• How the Global Hearing Loss Database enables data aggregation.
• How data can help advance the field of hearing loss.

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Youla Pompilus-Touré (POC,Primary Presenter), World Wide Hearing Foundation International, youla@wwhearing.org;
Youla Pompilus-Toure oversees the portfolio of international projects at World Wide Hearing. Prior to joining World Wide Hearing, she built an expertise enhancing organizational capacity to engage with vulnerable populations. For the Red Cross and Red Crescent Movement, CARE International, UNICEF and others, Youla led programs to protect human rights and provided guidance to improve the quality and accountability of humanitarian programming. She has worked in Turkey, Madagascar, Haiti, Burundi and Bolivia. She has also conducted advocacy at the United Nations to mobilize support on issues of post-conflict peace-building and gender-based violence. Youla holds an M.A. in Conflict Resolution from the University of Bradford, where she was a Rotary World Peace Fellow, and a Bachelor of Commerce from McGill University.