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10/24/2016  |   10:30 AM - 11:30 AM   |  BGPOP Building 4A/B/C

After Newborn Screening in Developing Nations – What do We do Next?

In developing nations like the Philippines—where innovative medical and audiological advances have inspired national governments to implement and pay for universal newborn screening—more and more babies are being screened. However, without further direct government intervention, there is little or no support for the infant or family until the child attempts to enter a special education center at age 6-7. Laws and medical and audiological evaluations now give a poor family a clearly identified deaf child but without providing realistic a social or educational support system. In many developing countries, many lower-income families may never even send their deaf child to school. Governments in developing nations, while showing empathy for these deaf children, cannot afford the cost of United States style birth-to-21-years education programs. This presentation addresses the issues of early identification of deaf children in developing nations that have limited or no early intervention services. Particular attention is paid to creating community based mentoring programs for basic parent-centered education (birth-3 years). In this model, community members—grandparents of deaf children to college students––would be trained to assist the family of newly identified deaf babies. These community advocates would help families obtain help such as medical care, regular hearing evaluations, training in using a hearing aid, and instruction in sign language. Local universities with teacher education, audiology and medical faculties, would provide basic training and support to the community advocates. The newly created community mentoring model developed at the University of the Philippines College of Medicine and College of Allied Medical Professions is presented for discussion.

• The participant will understand the delimma of Universal Newborn Screening in developing nations where there is little or no family support
• The participant will cite common obstacles that developing nations must overcome to provide early intervention support for families
• The participant will state the benefits of community based parent education support system.

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Dr. Richard W. Fee (POC,Primary Presenter), University of Guam, feesped@gmail.com;
Dr. Fee has served as a teacher of the deaf, principal, director of a state school for deaf, college professor and consultant in the US, Hong Kong, Australia, Guam and the Philippines over 47 years. He held a Fulbright Senior Specialist award in 2012 at the University of Santo Tomas -Faculty of Medicine. He has conducted teacher training workshops at UST, University of the Philippines- College of Medicine, University of Nueva Caceres(Naga) and West Vasayan State Univerity (Iloilo, etc. He currently serves on a UNBS committee in the Philippines. In addition, he is the Judicial Educator advising on disability issues within the court system on Guam and Micronesia.

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AAA DISCLOSURE: Financial - No relevant financial relationship exists.